NOW RECRUITING
About the Program
This project is a pilot research program that pairs families of children with invasive mechanical ventilation (IMV), with parent coaches (both parents and siblings) that have had experience with home care nursing. The overall goal of the program is to share tips and tricks that we have learned over the years both through personal experiences, and what we have learned from other families. Throughout the course of their involvement parents discuss strategies for advocating for home nursing including topics related to building and maintaining a home health nursing team. The coaching sessions are flexible and occur roughly weekly via video or phone conferencing, or in-person visiting in the family home or hospital.
Who, What, Where
Who is eligible?
Parents and guardians of children who currently use a ventilator and are in
the hospital waiting to be discharged home.
What does the study entail?
Parent coaching sessions either in person or over zoom where a parent coach
will discuss potential ways to address common challenges with finding and
keeping home health nurses.
Where does the study take place?
Over text, phone call, zoom, or in person
Interested in joining the program?
Please see our contact page to reach out to our research coordinator.