Sobotka lab news
June 3rd, 2025
Just Published:
Pediatric gastrostomy feeding tube weaning strategies: A scoping review
Click here for full article.
May 29th, 2025
Just Published:
Jumpstart to ABA therapy team presents at Comer's PEDS research day
April 16, 2025
Published:
Joel Schwab, MD "On Being a Doctor" Lecture
Join Dr. Sarah Sobotka at her webinar on April 17th. Click the zoom link to view.
April, 2025
Published:
ILABA Conference
Short-Term Education Program for Parents of Children with Autism Spectrum Disorder was accepted and presented at ILABA 2025, on April 4th in Glen Ellyn, IL.
January 21st, 2025
Published:
Home Health Care Research for Children With Disability and Medical Complexity
Vew paper here
The Importance of Functional Measures and Parental Input for Neurodevelopmental Assessment
View paper here
November 14, 2024
Published:
C3EN Pilot Awardee Sarah Sobotka Studies Parent-to-Parent Intervention for Home Nursing
Click here to view newsletter
Sobotka Lab Presents in Quebec City at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) Conference
Click to view the article
Published:
Amanda Goldstein presented: A Scoping Review of Pediatric Feeding Tube Weaning Interventions.
Sarah Sobotka presented: Parents' Perceptions of Delays and Disabilities in their Children with Invasive Mechanical Ventilation
Michelle High & Sarah Sobotka presented: Parent Perspectives on Education to Support Hospital-to-Home Discharge for Children with Invasive Mechanical Ventilation
October 1st, 2024
Published:
Welcome to our newest LEND program members
Alissa Zeglen and Melissa Singleton are the newest members of the LEND program. The aim of their research project is to comprehensively investigate the current research surrounding the effects of genetic mutations at 17p13.1 on affected individuals.
Shavani Patel and Amanda Obersen are a few more of the newest members of the LEND program. The project they are working on through the LEND program seeks to explore providers’ perspectives on anticipatory and diagnostic guidance for families of children with invasive mechanical ventilation (IMV) dependency, most of whom are survivors of extreme prematurity and face high rates of neurodevelopmental disabilities. Through key informant interviews with NICU and PICU providers, community-based therapists, and physicians, the study will gather qualitative data to describe experiences and opinions on habilitative needs and long-term outcomes. Particular attention will be given to challenges related to conditions such as cerebral palsy, autism, intellectual disabilities, and speech and feeding disorders, with a focus on addressing the impact of tracheostomies on expressive language development.
September 26th, 2024
Published:
"Let's E.A.T. (Eating with Assistive Technology)
The Let’s E.A.T. program is now recurting families who are spanish-speaking! Please visit our program page for more information.
July 17th, 2024
Published:
Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation.
Click to view article
June 10, 2024
Published:
Dr. Sobotka presents her work on the The Complex Care Journal Club Podcast.
Need for Neurodevelopmental Follow-up for Children with Invasive Mechanical Ventilation
The Complex Care Journal Podcast is a monthly series that discusses emerging evidence in the care of children with medical complexity with authors of recently published research, and explores implications for clinical practice for the interprofessional care team.
Soundcloud link: The Complex Care Journal Club Podcast
Pediatrics Research Day
*INFORMATION ABOUT THE RESEARCH DAY**
NurseNet
Looking for a nurse in your area? Check out out link to NurseNet, a promgram that assists families in getting connected with nursing agencies to find available nurses near you.
Pritzker Senior Research Symposium
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AACPDM 2024 conference
Registration is open for the AACPDM 2024 conference
Applications for the LEND program
Click to view the application for LEND
Illinois LEND program
The Leadership Education in Neurodevelopmental and related Disabilities (LEND) Program is desgined to improve the health and well-being of individuals with disabilites. It is a gradute level training program with the goal of preparing students for leadership roles and ensuring their compentency in their respetive fields.
Website for LEND program
Lab Members Present at the Pediatric Academic Societies Meeting
