I close my eyes as I sit on the edge of my bed, my chest rising up and down quickly as I struggle to breathe. To go to the hospital or not? It’s a Friday night and for most people, the answer would be common sense. I’m having trouble breathing and I won’t be able to see my primary doctor until Monday so what’s there to consider?
I open my eyes and look down at the blue inhaler that’s been my companion for the last few days. Unfortunately, it hasn’t helped much, which worries me. Rarely, does my asthma bother me and when it does, it’s usually solved by a few puffs. After all, I’d only had one asthma attack in my life.
Something else is wrong. I know it.
So why am I hesitating to get off the bed, walk into my mother’s room, and ask her to drive me to the ER?
I think of all of the past visits for various reasons…all ending similarly: a regret of going. But I am scared. And I don’t want to spend another night coughing so much that I wake up gasping for breath, too scared that if I shut my eyes, they will be shut forever. So, deciding to trust myself, to trust my body, I walk into my room and make the request of my mother. She gives me the concerned look that she always does when I’m sick. I’ve been trying to ease her mind for the last few days by saying that I’m fine, but I know that she knows that I’m not. Mothers always know.
I put on clothes and head to the car. Don’t mention your asthma. Don’t mention your asthma. Don’t mention…
It’s a quiet, but short drive. I walk in and feel out the chart and soon, I am quickly called to the front to get triaged. My heart is pounding. Here is the first test.
“Hi, sweetie, what are you in for today?” the young nurse asks taking my temperature and blood pressure.
Sweetie. Annoyance creeps in. Yes, I am short, very short and could easily pass for 15, even though I am 20. But, already, I feel belittled, and I know what I am about to say will be disregarded, as it usually is with “children.”
“I’m having trouble breathing,” I say, a bit of wheezing apparent as I do so.
She nods as she enters then in and asks for my other symptoms. But then we get to the past patient history portion. I can see her expression change to one of slight irritation.
“Any other medical conditions besides asthma?”
She glances out at the waiting room that is overflowing with sick people waiting to be seen. I knew from past experience that clearly I was expected to save this for a trip to my normal doctor.
I instantly regret coming.
I am sent back to wait in the waiting room with my mother and all of the other sick people.
I am called to the back. I sit on the white bed, listening to the beeping of the heart monitors, a sound that I hear more than I want.
A doctor walks in, looking down at his chart.
I brace myself for the confrontation.
“Hi, I’m Dr. Jacoby,” he says. “I understand you’ve been having trouble breathing? When did you start having trouble?”
I launch into my recounting. The recounting I’d practiced in my head the whole drive over and while waiting in the waiting room. “It started a few days ago. I had a really bad cold: runny nose, coughing, fatigue…but then I couldn’t breathe at night and my coughing is so bad that I can’t sleep at night.” I avoid the mention of my asthma. I know it will eventually come up, but I’m curious to see what he will suggest otherwise.
“Let me take a listen.” He listens. “I can hear wheezing.” He looks at the chart. “It could be your asthma.”
I try my hardest not to roll my eyes. “Yes, I’ve tried my inhaler, but it hasn’t helped.”
“Have you tried a breathing treatment?”
I lock eyes with him. Oh, it would be so easy to send me home with one of those.
“I don’t think it’s my asthma…or just my asthma…this feels different…like something else.” I try my best to explain, but I am overwhelmed.
I can see the tiredness in his face. It’s a late summer night. I know he thinks it’s my asthma, but he knows by the determined look on my face that he has to do something else. “I’ll order a few tests.”
I am relieved and soon I am escorted to get a chest X-Ray.
When the results are back, I sit in the room, patiently. The doctor reenters.
“So your X-rays don’t show anything abnormal. Your cold most likely triggered your asthma to start acting up. It’s pretty common. We’ll give you a breathing treatment. That should make you feel better.”
It is not what I expected, and it is not what I wanted to hear, but I don’t know what else to say. Was there another test that I should suggest? Unsure, I just shake my head “okay.”
I am given the breathing treatment. As I sit there with the mask over my face, breathing in the treatment, I know that it is not working. Once I take it off, I still feel the same.
A nurse enters. “Feel any better?”
“Just a little.”
She turns and smiles at my mother. “Asthma is tricky. For some people, it affects them mostly as children and rarely as adults. But for others, it can remain a life-long issue.”
Why is she talking to my mother?
“My asthma rarely bothers me. Even as a child,” I say in an attempt to steer the conversation back in my direction.
She continues to talk to my mother. “It’s normal for the breathing treatments not to eliminate all of the symptoms right away. But it should start to open up her airways and over the next day or so, she should feel better. You can follow up with your primary doctor if the symptoms persist. We’ll give her another one before she leaves.” She walks out of the room.
I am livid. This was a waste of time again!
But what can I do?
She returns and once again, I have to sit through another ineffective breathing treatment. I’m ready to leave, so when she asks me again if I feel better, this time, I nod. “Yes, a lot better.”
On the ride home, I pray that whatever is the matter gets better over the next few days. And to my relief, it does.
But a few months later, in the absence of a cold, when I again feel the tightness of my chest, and it becomes hard to breathe, I don’t go to the hospital.
Writer’s Notes
My topic connects directly to doctor’s visits, so I wanted to reflect on my own doctor’s visits, but more specifically, on times when I didn’t feel heard. For me, personally, this usually happens during visits to the emergency room. I didn’t want to focus directly on race, even though that is a factor, but also on age and just being dismissed based on past diagnoses. For me, it’s always easy to relate upper respiratory issues to my asthma, which has been very frustrating. I wanted to explore how this can affect how patients thinks, how they explain their symptoms, their attempts to stand up for themselves, and feeling defeated. I struggled with trying to add a bit of humility for the doctors. I don’t want it to feel very one-sided. I tried to include that the doctors could be tired and to mention the room full of people waiting to be seen. I also wanted to include that the chest X-Ray didn’t show anything abnormal, so it would be reasonable to sum it up to asthma. So I would like suggestions on how I could better do that?